BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Healx - ECPv5.0.0.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Healx
X-ORIGINAL-URL:https://healx.ai
X-WR-CALDESC:Events for Healx
BEGIN:VTIMEZONE
TZID:UTC
BEGIN:STANDARD
TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20210101T000000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=UTC:20210930T153000
DTEND;TZID=UTC:20210930T170000
DTSTAMP:20260830T055213
CREATED:20210910T151156Z
LAST-MODIFIED:20210915T125345Z
UID:9793-1633015800-1633021200@healx.ai
SUMMARY:Webinar | Measuring Quality of Life
DESCRIPTION:We’re teaming up with Findacure to explore the ways to measure quality of life in rare diseases for the purpose of health technology assessment\, and the ways that patient organisations can get involved in the process. \nWhen developing drugs for a rare condition groups need to consider which evidence will be required by health technology assessment bodies to ensure a smooth pathway for patient access. While demonstrating that a treatment has a significant impact on outcome measures assessed by clinicians is key for the success of clinical trials\, it has become increasingly important to demonstrate a real impact on the lives and wellbeing of the patients themselves to ensure positive reimbursement decisions and access. \nWe’re looking forward to what’s set to be an insightful session. Will we see you there? If you aren’t attending but would like to learn more about our work\, please contact us for more information. \nShare this story\n			Healx on Facebook\n			\n		  \n			Healx on Twitter\n			\n			  \n			\n		  
URL:https://healx.ai/event/webinar-measuring-quality-of-life/
END:VEVENT
END:VCALENDAR