Community Engagement
People living with rare disease are the reason we exist
It takes a village
The rare disease community is vital to the discovery of new treatments.
We value direct conversation and engagement with people and groups from around the world, and their shared voice helps steer our drug discovery and development programmes.
You are the experts
We are always eager to increase our patient group collaborations for the diseases we're working on. Alongside our work with various patient organisations on treatment development projects, we engage and support rare disease groups and their families through events, webinars and other educational content.
Advocating for the rare disease community is one of our core values and we encourage our team to take volunteering days to help out with rare disease charities and projects.
Resources
Volunteer hub
Many of our team commit time outside of working at Healx to help the rare disease community. We welcome opportunities from patient organisations and charities and our volunteer network may be able to help!
Some of the ways they can help include:
Some of our partners
Community support projects
Over the last few years, we have been proud to support and fund a number of patient groups and, in line with our commitment to transparency, we have disclosed details of that support below.