People living with rare disease are the reason we exist
It takes a village
The rare disease community is vital to the discovery of new treatments.
We value direct conversation and engagement with people and groups from around the world, and their shared voice helps steer our drug discovery and development programmes.
Dr Bruce Bloom
We continue to be a part of the rare disease community and work closely with patient groups on all of our disease projects, provide new resources for them, and support our colleagues who have a rare disease or care for family members with one.
You are the experts
We are always eager to increase our patient group collaborations for the diseases we're working on. Alongside our work with various patient organisations on treatment development projects, we engage and support rare disease groups and their families through events, webinars and other educational content.
Advocating for the rare disease community is one of our core values and we encourage our team to take volunteering days to help out with rare disease charities and projects.
Many of our team commit time outside of working at Healx to help the rare disease community. We welcome opportunities from patient organisations and charities and our volunteer network may be able to help!
Some of the ways they can help include:
Dr Allyson Berent
Healx’s use of cutting-edge AI, combined with our scientific team’s expertise in cell lines and animal models, makes this innovative program incredibly promising - creating a unique opportunity to quickly bring therapies from bench to clinic.
We are delighted to be collaborating with Healx in this pioneering partnership which has the potential to accelerate the development of much-needed treatments for both forms of PKD.
Dr Mike Tranfaglia
The Healx partnership has been nothing short of amazing. In less than two years together, we were able to deliver decades-worth of drug discovery, and now we’re taking those discoveries to the clinic.
We are excited to move the needle forward for pancreatitis patients with the help of Healx. Their AI-powered drug repurposing model gives pancreatitis patients hope that they will see an effective treatment for their disease in the next five years.
Annette Bakker, PhD
We at Children’s Tumor Foundation (CTF) are very excited about this partnership. It is very encouraging that Healx is committed to developing innovative treatments for NF patients in collaboration with CTF.
Kate Adcock, PhD
It’s an exciting time for research into muscle-wasting conditions, and treatments are on the horizon. By working with world-leading partners like Healx, we can drive vital research forward and accelerate access to treatments.
Rick Thompson, PhD
Healx combines a deep knowledge of drug repurposing with a passionate desire to deliver real change to rare disease patients.
Some of our partners
Community support projects
Over the last few years, we have been proud to support and fund a number of patient groups and, in line with our commitment to transparency, we have disclosed details of that support below.